Data Information System (DAISY)
Open source software for a research data registry
Within life-science research, the EU General Data Protection Regulation has a significant operational impact on organisations that use and exchange controlled-access Human Data. One key principle of the GDPR is accountability, where institutions are required to keep a record of their “data processings". The Data Information System (DAISY) is designed to help institutions, projects or data hubs to record personal data used in biomedical research.
For more information:
- Provenance-enabled stewardship of human data in the GDPR era (F1000 poster)
- Alper P. et al. (2018) Provenance-Enabled Stewardship of Human Data in the GDPR Era. In: Belhajjame K., Gehani A., Alper P. (eds) Provenance and Annotation of Data and Processes. IPAW 2018. Lecture Notes in Computer Science, vol 11017. Springer, Cham