On May 15-16, Smart4Health leaders met to exchange on the latest progress and work plans in this ambitious new international EU project. As one of three Luxembourg partners, ELIXIR-LU hosted the event and discussed its plans for realising 'data donations' from citizens to researchers in Europe with help of the research infrastructure ELIXIR.
ELIXIR-LU is a partner in the FAIRplus consortium, coordinated by the ELIXIR Hub, which will support EFPIA companies (European Federation of Pharmaceutical Industries and Associations) and specific IMI projects in making their data FAIR: Findable, Accessible, Interoperable and Reusable.
On the occasion of the tenth anniversary of the Innovative Medicines Initiative (IMI), Luxinnovation interviewed Prof Dr Reinhard Schneider, Head of ELIXIR-LU. The interview focused on the involvement of ELIXIR-LU and of the Bioinformatics Core of the Luxembourg Centre for Systems Biomedicine (LCSB) in IMI projects. It highlights the expertise of the team in data curation, integration and visual analytics, and details the role of the Luxembourg Node in projects such as eTRIKS, AETIONOMY and the soon to be launched FAIRPlus consortium.
Dr Regina Becker, in charge of strategy development for ELIXIR-LU, recently wrote an article regarding GDPR and its impact on biomedical research. Entitled “Biomedical research: achieving transparency under the General Data Protection Regulation”, it was published in the September 2018 issue of Semper, a monthly magazine distributed in Luxembourg and targeting doctors, pharmacists and healthcare professionals.
On June 13, the ELIXIR-LU team invited several Luxembourgish stakeholders to a first meeting to introduce ELIXIR, the European infrastructure for life science information, and the national Node ELIXIR-LU, present recent activities and developments of ELIXIR-LU and discuss data challenges in the biomedical field.
On May 3, ELIXIR-LU held the first meeting of its Scientific Advisory Board (SAB), composed of five members heading various European research infrastructures and other ELIXIR Nodes (see list below).
In February, Regina Becker, in charge of strategy development at ELIXIR Luxembourg, gave an introduction into the upcoming General Data Protection Legislation (GDPR) that will come into force on 25 May 2018.
On 7 September, the LCSB hosted the launch event of ELIXIR-LU, the Luxembourgish node of ELIXIR. Around a hundred participants joined the symposium, which started with opening speeches from Marc Hansen, the Deputy Minister of Higher Education and Research, and Lydia Mutsch, the Minister of Health.
The ELIXIR hub has published a set of guiding principles on FAIR (Findable, Accessible, Interoperable and Reusable) Data Management.
The official launch of ELIXIR-LU will take place on September 7 at the Luxembourg Centre for Systems Biomedicine of the University of Luxembourg.