Services
DAISY
DAISY is an open-source web application that allows biomedical research institutions to map their data and data flows in accordance with GDPR’s accountability requirement. The application is available as a free and open-source tool on Github and the issue tracker is open to everyone.
What?
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Open-source web application allowing research institutions to map their data and data flows in accordance with GDPR requirements.
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The application is available as a free and open-source tool on Github and the issue tracker is open to everyone.
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Tailored specifically for biomedical research, supporting complex data flows and tagging projects with controlled vocabulary terms to denote the study features.
Why?
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To follow the novel GDPR principle, known as accountability, which requires demonstrating compliance with all data protection principles and recording all data processing.
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To keep a variety of data about the projects, datasets, contracts or collaborators.
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To fulfils GDPR requirements effectively
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To enhance collaboration between partners.
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To allows your institution to create its own GDPR data register.
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To separate data accessibility between users: DAISY provides information for legal officers, regular users or principal investigators.
How?
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Access DAISY
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Contact ELIXIR data steward
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Get familiar with the offical DAISY user guide
For more information about DAISY:
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DAISY: A Data Information System for accountability under the General Data Protection Regulation GigaScience, Volume 8, Issue 12, December 2019.
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Provenance-enabled stewardship of human data in the GDPR era (F1000 poster)
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Alper P. et al. (2018) Provenance-Enabled Stewardship of Human Data in the GDPR Era. In: Belhajjame K., Gehani A., Alper P. (eds) Provenance and Annotation of Data and Processes. IPAW 2018. Springer Lecture Notes in Computer Science, vol 11017.
For more information about GDPR:
For an introduction into the General Data Protection Regulation and its implication for sharing of research data, have a look at the ELIXIR Webinar on the topic: Requirements in data protection law and the upcoming General Data Protection Regulation (GDPR) implementation. The slides are available here.
For a quick overview on GDPR and its impact on biomedical research, have a look at the article entitled “Biomedical research: achieving transparency under the General Data Protection Regulation” (read the full article), published in the September 2018 issue of Semper, a monthly magazine distributed in Luxembourg and targeting doctors, pharmacists and healthcare professionals.
Other presentations regarding the GDPR:
